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04-23-2012, 07:06 AM
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#101
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Moderator Emeritus
Join Date: Aug 2006
Location: West Virginia
Posts: 2,289
SUN #17
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Well, I'm waiting for my ride (friend) and we will be heading to the hospital to see "if" my platlets are up enough for me to have my chemo today. Fingers crossed.
Kitty
__________________
__________________
Sunny #18 2003 F-344SR #8157
Sunny #19 1997 T-2653 #5485
1999 Ford F350XLT DRW Crew Cab, Long bed 7.3 PSD
2002 VW Jetta TDI.. AKA: Kitty's Kruiser
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04-23-2012, 07:07 AM
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#102
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Senior Member
Join Date: Nov 2006
Location: New York
Posts: 2,909
SUN #93
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Fingers and toes crossed but most importanly prayers coming your way!
Hopefully you get your regular techs accessing your port!
__________________
__________________
Kathy & Leo SUN 093
Central Adirondacks of New York
2013 Rubicon 2900 Toy Hauler
We loved our 2007 T-2499
2010 Ford F-350 4x4 Lariat Super Crew Dually Diesel
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04-23-2012, 07:27 AM
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#103
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Senior Member
Join Date: Jan 2007
Location: Pennsylvania
Posts: 380
SUN #149
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Kitty.....
Our thoughts and prayers continue.....
Frank & Sharon
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Frank Yake - Sunlines 1982-2008 TT= 2016 Casita Liberty 17 SD (NASA42-B) TV= 2017 Hyundai Santa Fe
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04-23-2012, 08:42 AM
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#104
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Senior Member
Join Date: Jan 2011
Location: Florida
Posts: 1,279
SUN #1830
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(((kitty))) crossing finger, happy thoughts and sincere prayers. Sometimes good people just need all the help they can get.
__________________
Beverly & Jim
Sebring, Florida
1991 T-2363 Solaris
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04-23-2012, 11:36 AM
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#105
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Moderator Emeritus
Join Date: Aug 2006
Location: West Virginia
Posts: 2,289
SUN #17
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Well, no chemo today, platelets still too low, but they have come up some, so hopefully next week I will be able to have my chemo. I had even talked to the RN that usually accesses' my port and told her I NEEDED her to access my port if I could do the chemo today, then I told her about last weeks nightmare.
Saw my doctor and he is going to speak to the surgeon that put the port in my chest to request that he re-position & anchor my port since it is moving around so much.
I now return next tuesday at 8:30 to see "if" I can have my chemo. Had date changed from monday to tuesday since the "Sunny Port" is scheduled to be installed on monday. I need to be here to take pictures.
Kitty
Kitty
__________________
Sunny #18 2003 F-344SR #8157
Sunny #19 1997 T-2653 #5485
1999 Ford F350XLT DRW Crew Cab, Long bed 7.3 PSD
2002 VW Jetta TDI.. AKA: Kitty's Kruiser
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04-23-2012, 07:47 PM
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#106
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Moderator Emeritus
Join Date: Aug 2006
Location: West Virginia
Posts: 2,289
SUN #17
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You mention "techs" were accessing your port? In NYS only trained/certified RN's are allowed to access ports. There are all kinds of protocol, skills, and procedures required...she can’t believe techs are accessing yours. She suggested that you demand only a skilled/trained/certified RN be allowed to access your port, that is your right. [/QUOTE]
Today, I saw the two ladies that tried to access my port last monday, and they were indeed RN's. New RN's I guess. While I was waiting for my blood work to process, one of those new gals was trying to get an IV working on the lady next to me and was having no luck, so at least she "did" go get someone to get the job done.
__________________
Sunny #18 2003 F-344SR #8157
Sunny #19 1997 T-2653 #5485
1999 Ford F350XLT DRW Crew Cab, Long bed 7.3 PSD
2002 VW Jetta TDI.. AKA: Kitty's Kruiser
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04-23-2012, 07:51 PM
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#107
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Senior Member
Join Date: Nov 2006
Location: New York
Posts: 2,909
SUN #93
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well sorry to hear no treatment today....and boy it sounds just like you to postpone a day - not for better blood results but to take photos!!!!!!!!!!!!
Hang in there girlfriend!
__________________
Kathy & Leo SUN 093
Central Adirondacks of New York
2013 Rubicon 2900 Toy Hauler
We loved our 2007 T-2499
2010 Ford F-350 4x4 Lariat Super Crew Dually Diesel
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04-24-2012, 05:53 AM
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#108
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Senior Member
Join Date: Jan 2011
Location: Florida
Posts: 1,279
SUN #1830
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Maybe the longer time between treatments is going to be the norm for you since it seems to be happening so often. I'm sure the doctor is taking that into account.
Don't forget the pictures.
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Beverly & Jim
Sebring, Florida
1991 T-2363 Solaris
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04-30-2012, 02:56 PM
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#109
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Senior Member
Join Date: Nov 2006
Location: New York
Posts: 2,909
SUN #93
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Good luck on Tuesday.....how did the Sunny "hut" go today???
__________________
Kathy & Leo SUN 093
Central Adirondacks of New York
2013 Rubicon 2900 Toy Hauler
We loved our 2007 T-2499
2010 Ford F-350 4x4 Lariat Super Crew Dually Diesel
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04-30-2012, 05:58 PM
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#110
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Moderator Emeritus
Join Date: Aug 2006
Location: West Virginia
Posts: 2,289
SUN #17
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Sorry, forgot to post changes. Got call from RV Port folks, had to change install date to tuesday, May 1st. SO, had to call oncology AGAIN to change my chemo from May 1st. tried to get it back on April 30th, but they were full, so it is now scheduled for May 2nd at 8:30am.
I hope those little platelets suckers have re-grouped and gained some new, stronger members. I hate missing treatments, which just prolongs however long I have to have treatments, which just depends on how the tumors in my liver continue to shrink.
I just deal with it, try to kinda laugh stuff off, no sense in getting upset about it. But, I really don't like being a "Needle Testing Ground" and THAT will NOT ever happen again unless I'm unconcious.
But, need to get it done so that I"ll be feeling somewhat good for the Rocky Gap GTG, May 18 - 20.
Plus, I still have to finish the fireplace install, gotta find my jigsaw, located my sawzall, circular saw, chop saw, drill, but that darn jigsaw is hiding somewhere. Got all the batteries re-charging, so power should be no problem .
Camera is loaded with fresh batteries and have more new ones if needed for the RV Port install. Hum, might just have to set up the anti-gravity lounge chair for a front row seat More chair room available, no charge, just show up. We could even order PIZZA !!!!
It's gonna be so nice knowing that Sunny is under cover. OH yeah, I backed Sunny up the driveway again on saturday. That's twice now !!!
Kitty
__________________
Sunny #18 2003 F-344SR #8157
Sunny #19 1997 T-2653 #5485
1999 Ford F350XLT DRW Crew Cab, Long bed 7.3 PSD
2002 VW Jetta TDI.. AKA: Kitty's Kruiser
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05-01-2012, 01:14 PM
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#111
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Moderator
Join Date: Feb 2010
Location: Washington
Posts: 883
SUN #1013
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Quote:
Originally Posted by kanyonkitty
OH yeah, I backed Sunny up the driveway again on saturday. That's twice now !!!
Kitty
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If you can back up your driveway you can handle anything; steely-eyed Sunline pilot...
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05-01-2012, 07:46 PM
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#112
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Moderator Emeritus
Join Date: Aug 2006
Location: West Virginia
Posts: 2,289
SUN #17
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Next I will have to tackle the "Sunny Port". Not sure I will be able to do that since it won't require me backing in "blind" ROFL
__________________
Sunny #18 2003 F-344SR #8157
Sunny #19 1997 T-2653 #5485
1999 Ford F350XLT DRW Crew Cab, Long bed 7.3 PSD
2002 VW Jetta TDI.. AKA: Kitty's Kruiser
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05-02-2012, 03:30 PM
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#113
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Moderator Emeritus
Join Date: Aug 2006
Location: West Virginia
Posts: 2,289
SUN #17
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OK, here's my update. Thanks to lots of prayers from all my friends and me having a good long hard talkin' to my platelets (I threatened them), there were MUCH improved today, so I was able to have my chemo today. Start my chemo pills tonight and then 2X a day for the next 2 weeks. Back on May 23rd for another round of chemo. Today was treatment #8, but it sure seems like I have had more than that. The one nurse told me that "normally" they do 12 treatments, but it depends on how the cancer responds, guess I'll be having another CAT Scan in the future to see what the tumors are doing.
OK, going to take a nap,
Kitty
__________________
Sunny #18 2003 F-344SR #8157
Sunny #19 1997 T-2653 #5485
1999 Ford F350XLT DRW Crew Cab, Long bed 7.3 PSD
2002 VW Jetta TDI.. AKA: Kitty's Kruiser
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05-02-2012, 08:07 PM
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#114
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Senior Member
Join Date: Jan 2011
Location: Florida
Posts: 1,279
SUN #1830
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Another treatment closer to healing.
__________________
Beverly & Jim
Sebring, Florida
1991 T-2363 Solaris
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05-02-2012, 08:49 PM
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#115
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Senior Member
Join Date: Nov 2006
Location: New York
Posts: 2,909
SUN #93
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Glad to hear another treatment done! Prayers coming your way for an uneventful two weeks of pill taking!!!!!
__________________
Kathy & Leo SUN 093
Central Adirondacks of New York
2013 Rubicon 2900 Toy Hauler
We loved our 2007 T-2499
2010 Ford F-350 4x4 Lariat Super Crew Dually Diesel
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05-02-2012, 10:58 PM
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#116
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Senior Member
Join Date: Sep 2006
Location: Ontario
Posts: 503
SUN #43
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Glad to everything worked out this week and you were able to get your treatment. We are continuing to keep you in our prayers and sending good thoughts and wishes your way.
__________________
2018 GMC Denali 3500HD Dually
2018 Grand Design 384GK
Formerly,
2003 F311SR
2005 T-2753
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05-23-2012, 08:10 PM
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#117
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Moderator Emeritus
Join Date: Aug 2006
Location: West Virginia
Posts: 2,289
SUN #17
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Dag Nab It, no chemo today, those stupid platelets were too low again. Doc has me waiting "2" weeks until we try again. That will be June 6, the day before we head to Buttonwood. Not good timing at all.
But, I WILL be there !!!!
Kitty
__________________
Sunny #18 2003 F-344SR #8157
Sunny #19 1997 T-2653 #5485
1999 Ford F350XLT DRW Crew Cab, Long bed 7.3 PSD
2002 VW Jetta TDI.. AKA: Kitty's Kruiser
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05-23-2012, 08:18 PM
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#118
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Moderator
Join Date: Dec 2006
Location: Pennsylvania
Posts: 2,285
SUN #128
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Booo! I'm sorry to hear that We wanted to give you a tour of the new 38 foot Fox!
__________________
Pam
Lance 1475 "Snoopy"
2012 GMC Sierra 3500HD 4x4 D/A
2012 Arctic Fox 30U, SUNLINES - 2006 2753 "Tweety", 2007 QUE "QUEtSE", 2364, 1660
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05-23-2012, 08:26 PM
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#119
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Moderator Emeritus
Join Date: Aug 2006
Location: West Virginia
Posts: 2,289
SUN #17
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OH, I will be at Buttonwood. I'm not gonna miss out on a tour of the 40' Fox
Kitty
__________________
Sunny #18 2003 F-344SR #8157
Sunny #19 1997 T-2653 #5485
1999 Ford F350XLT DRW Crew Cab, Long bed 7.3 PSD
2002 VW Jetta TDI.. AKA: Kitty's Kruiser
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05-23-2012, 08:38 PM
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#120
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Senior Member
Join Date: Nov 2006
Location: West Virginia
Posts: 446
SUN #96
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Sorry to hear you could not get your treatment today Kitty Did he give you a reason for the waiting 2 weeks?
We are "trying" to work things out for at least one night at Buttonwood.
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__________________
David & Mary Ann
2018 Ford F350 Dually 6.7L Powerstroke
2006 Sunline Solaris T-264-SR
2012 Palomino Bronco B1500LB
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